Resources

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MDS Information

  1. What is MDS?
  2. Who is at risk?
  3. Signs and Symptoms
  4. Diagnosis
  5. Prognosis
  6. Treatment Overview
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MDS Treatments

  1. Vidaza (azacitidine)
  2. Revlimid (lenalidomide)
  3. Dacogen (decitabine)
  4. Chemotherapy
  5. Stem Cell Transplantation
  6. Supportive Care
    1. Anemia
    2. Iron Chelation Therapy for Excess Iron
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Personal Perspectives

  1. Vernette Godfrey: From MDS Caregiver To MDS Patient
  2. Peggy Mills: MDS Patient Chooses Not To Pursue Aggressive Treatment
  3. Ally Boyle: MDS Patient Works To Find Stem Cell Donors For Himself And Others
  4. Carolyn and Hannah Cooney: MDS Patient Balances Family And Work With The Realities Of The Disease
  5. Sam and Cyndy Morreale: MDS Patient Builds New Life Through Painting And Charity Work
  6. Gary Haub: Newly Diagnosed Patient Is Ready To Fight MDS And AML
  7. Jürgen Neugebohrn: Extensive Preparation Led To New Life For MDS Survivor
  8. Aldeane Sööt: MDS Survivor Shares Journey To Wellness
  9. Berit Behnke: Retiree With Newly Diagnosed MDS Seeks Connection To Other MDS Patients
  10. Barbara Davis, Nita Plauche, Andy Carrico, & Ryan Collins: Patient Experiences With Stem Cell Transplants From Unrelated Donors
  11. Roger Contreras, Steve Flaig, & Robert Poole Jr.: Patient Experiences With Stem Cell Transplants From Sibling Donors
  12. Carl Riegel: College Professor Keeps Busy While Living With Myelodysplastic Syndromes
  13. Bob Macfarlane: Vietnam Vet Fights Myelodysplastic Syndromes To Spend More Time Outside
  14. Mitch Kaplan: Blogging About Skiing, Golfing, And Airplanes – And Living With MDS
  15. Roger Contreras: “I have MDS”
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Physician Columns

  1. Dr. David Steensma, from the Dana-Farber Cancer Institute, writes a quarterly column
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Patient Help Center

  1. Directory of Treatment Centers
  2. Books About MDS
  3. Glossary
  4. Guide To Clinical Trials For Myelodysplastic Syndromes Patients
  5. Caring For A Loved One With Myelodysplastic Syndromes
  6. The H1N1 Swine Flu Vaccine And MDS